Category: Uncategorized
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Beautifully Broken
I have sat down to write an update several times now and my mind just goes blank. Maybe its writers block (although I certainly don’t consider myself a writer) or maybe its me not wanting to put it all out there anymore or maybe I don’t want Mattie to read all this one day and…
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Continued Support
The 2014 Hope for Mattie Charity Golf Tournament was an amazing success! We raised approximately $8,000! Every penny raised will help pay for Mattie’s new leg braces and continued ABM therapy sessions. We owe a HUGE thank you to all those that participated, volunteered, sponsored and donated. We are forever grateful for your generosity. Mattie’s…
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World Cerebral Palsy Day
Today is World Cerebral Palsy Day, a day that’s all about ideas that will change the world for people with cerebral palsy. “Last year’s winners include a designer walker and a spill-proof cup. I have an idea—but the thing is, it already exists. The concept: More research for cerebral palsy. Some 17 million people across the world…
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She is perfect
Mattie’s great-grandfather, “Papa”, passed away this past weekend. He was an integral part of my life and Mattie’s life. When I was on hospital bed rest with Mattie, he would come visit me everyday. Some days he would sit by my bed rubbing my back. Other days he would wheel me down to the garden for fresh…
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The New Normal
I know that I have been silent for awhile now. I am not sure why. When I try to sit down and write an update I am not even sure what to write anymore. It seems like life went a bit crazy (whirlwind) last October with selling our house, moving, Mattie’s surgery in TX, and…
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Thank You!
We wanted to take a moment to say thank you to everyone who ran, walked, volunteered, donated, and sponsored the 2nd Annual Run for Hope 5K and 1 Mile Event. With your help, this year’s race was a huge success! We raised over $4,000, all of which will go directly to Mattie’s therapies. Congratulations to…
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2nd Annual Run for Hope 5K and 1 Mile Fun Run/Walk
We are just 2 months away from the 2nd Annual Run for Hope 5K and 1 Mile Fun Run/Walk! This year will be even bigger and better! We are excited to announce that we will be adding a Family Post Race Party with Music, Bounce Houses, Food, Raffles and More! Even if you are not…
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The year in review
One of the most difficult things about being the parent of a special needs child is that progress isn’t linear. There are periods of time when Mattie seems to be improving in leaps and bounds, followed by months of seemingly static capabilities. This result’s in a constant emotional roller coaster: feelings of elation when things…