Tag: Cerebral Palsy
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The New Normal
I know that I have been silent for awhile now. I am not sure why. When I try to sit down and write an update I am not even sure what to write anymore. It seems like life went a bit crazy (whirlwind) last October with selling our house, moving, Mattie’s surgery in TX, and…
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Thank You!
We wanted to take a moment to say thank you to everyone who ran, walked, volunteered, donated, and sponsored the 2nd Annual Run for Hope 5K and 1 Mile Event. With your help, this year’s race was a huge success! We raised over $4,000, all of which will go directly to Mattie’s therapies. Congratulations to…
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2nd Annual Run for Hope 5K and 1 Mile Fun Run/Walk
We are just 2 months away from the 2nd Annual Run for Hope 5K and 1 Mile Fun Run/Walk! This year will be even bigger and better! We are excited to announce that we will be adding a Family Post Race Party with Music, Bounce Houses, Food, Raffles and More! Even if you are not…
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The year in review
One of the most difficult things about being the parent of a special needs child is that progress isn’t linear. There are periods of time when Mattie seems to be improving in leaps and bounds, followed by months of seemingly static capabilities. This result’s in a constant emotional roller coaster: feelings of elation when things…
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Sponsor-A-Therapy Week: Day 4 & Day 5
Day 4: So, I am super behind in posting this… like a week. I just can’t get caught up on life sometimes 🙂 Tuesday is our “EI” day (early interventionist). During the hour she comes to our house, she works on Mattie’s cognitive skills, fine motor skills, speech, and just about everything else. Some things…
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Sponsor-A-Therapy Week – Day 2 & Day 3
Day 2: Sunday was our last day in Gainesville. Mattie completed another 2 ABM sessions. Sunday’s ABM sessions were sponsored by two of my best friends, Roxanne Anderson and Mindy Bennett!! Mattie was pretty tired after our weekend, as you can see 🙂 If you are interested in learning more about ABM, here is a great…
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World Prematurity Day
Today is World Prematurity Day. I keep seeing picture after picture of so many amazing kids who beat the odds. It is pretty cool to see 🙂 Mattie was 9 weeks early, born at 31 weeks. With only a 23 days stay in the NICU, we were hopeful. Here is a pic of Jim holding Mattie’s…
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Sponsor-A-Therapy Kick Off & Day 1
Today kicks off the Hope for Mattie Sponsor-a-Therapy Week. Each day we will be highlighting the therapy, who sponsored it, and a picture of Mattie. If you are interested in sponsoring a therapy for Mattie, please click the link below. We will be doing another Sponsor-A-Therapy week in January! As always, thank you for your…
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Whirlwind
The Hope for Mattie Charity Golf Tournament was an amazing success! We raised over $6,500 for Mattie. Every penny raised will go to fund her therapies. We owe a HUGE thank you to all those that participated, volunteered sponsored and donated. We are forever grateful for your generosity. Mattie’s success is a direct reflection of…
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Ultimate Goal
It has been 5 weeks since we have been back from our trip to New York. Jim, Mattie and I flew into Long Island to have a consult with Dr. Jordan about Mattie’s legs, SPML surgery, and the possibility of getting custom AFO’s made. Dr. Jordan has come highly recommended and I was excited to…