Tag: Cerebral Palsy
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Hope for Mattie Charity Golf Tournament – October 5th
The first ever Hope for Mattie Charity Golf Tournament and Banquet Dinner is taking place October 5th… a few weeks away! All the proceeds raised from this event directly benefit Mattie. Want to help make the tournament a giant success and ensure Mattie gets the therapies she needs? We need players! Help get the word…
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Rolling Along
When Jess told me that she had signed us up for a wheelchair fitting, my first reaction was to resist. I thought up several excuses in my head why Mattie didn’t need one. She was too little-she won’t know what to do with it-we will use it as nothing more than a glorified (expensive) stroller.…
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A diagnosis is not a prognosis
A diagnosis is not a prognosis. I can’t tell you how many times I have repeated this 6 word sentence. Mattie’s Neonatologist told us this when we were called into his office the day we learned Mattie had PVL (brain damage). As Mattie grew and failed to meet milestone after milestone, I would almost chant…
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Mostly Smiles
The progress Mattie has made cognitively the past 6 months is so significant I sometimes can’t even believe it myself. Mattie was not even talking last November. She finally passed her hearing test in December (on my birthday) and has made so much progress. She has at least 50 words she uses along with 20…
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Run for Hope
To check out pictures from the 1st Annual Run for Hope 5K – Click Here! I will admit that the few days leading up to race day, I was nervous, stressed, and driving everyone crazy, namely Jim. I had been up till 1am for almost 6 days straight working on the details and getting everything…
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Moving Forward – Our Cross Country Trip
Jim, Mattie, and I recently got back from our 9 day trip to California. This trip has been in the making for the past year. The main ABM Center is in San Rafael, just north of San Francisco. Since starting ABM 15 months ago, I knew that we just had to go out there to…
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Run for Mattie
The Run for Mattie Team just completed the Gasparilla ½ Marathon on February 24th. Our Fund-Racing team for this race consisted of 7 members who all worked hard to “Run for Mattie”. As a team we raised over $2,500 for this race. We were just amazed at the generous donations that kept pouring in and…
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The dreaded 7 letter word
We had to take Mattie back to the eye doctor last Tuesday. I had noticed that she was losing focus and her left eye was turning outward on occasion. Dr G assured me that her eyes looked fine and the outward turn would improve as her eyes adjusted to the new position and got stronger.…
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2 Years Later
Exactly 2 years ago to the day, Jim and I were told I would have to live in a hospital until Mattie was born. Just typing this out makes my heart hurt a little. We were devastated. We kept looking at each other wondering how this happened to us, what would happen to Mattie, how…
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Big Decisions
With all this cognitive development going on, Mattie had not really been “working” on her gross motor skills. Since our last post we have had quite a few ABM sessions in Gainesville and in NYC. We also started back doing cranial sacral massages. The NYC trip went very well. By the last session, Mattie was…