Hope For Mattie

Tag: Milestones

  • The year in review

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    hopeformattie
    in

    One of the most difficult things about being the parent of a special needs child is that progress isn’t linear. There are periods of time when Mattie seems to be improving in leaps and bounds, followed by months of seemingly static capabilities. This result’s in a constant emotional roller coaster: feelings of elation when things…

  • A diagnosis is not a prognosis

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    hopeformattie
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    A diagnosis is not a prognosis. I can’t tell you how many times I have repeated this 6 word sentence. Mattie’s Neonatologist told us this when we were called into his office the day we learned Mattie had PVL (brain damage). As Mattie grew and failed to meet milestone after milestone, I would almost chant…

  • Perseverance and Determination

    Perseverance and Determination

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    by

    hopeformattie
    in

    Every now and then I get sucked into the milestone checklist. I did it today. Mattie just turned 15 months old. When we adjust for her prematurity that technically puts her at a 13 months old level. So I decided to look at the 1 year milestones again since I have given her a few…