Tag: PVL
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Cerebral Palsy Awareness Day
Today is Cerebral Palsy Awareness Day. To me this is a day to spread awareness, love, and hope. Today is a day to take a stand for the prevention, treatment and cure of Cerebral Palsy. I know that most people don’t know what cerebral palsy really is. Heck, I didn’t really know until Mattie was…
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World Cerebral Palsy Day
Today is World Cerebral Palsy Day, a day that’s all about ideas that will change the world for people with cerebral palsy. “Last year’s winners include a designer walker and a spill-proof cup. I have an idea—but the thing is, it already exists. The concept: More research for cerebral palsy. Some 17 million people across the world…
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Sponsor-A-Therapy Week: Day 4 & Day 5
Day 4: So, I am super behind in posting this… like a week. I just can’t get caught up on life sometimes 🙂 Tuesday is our “EI” day (early interventionist). During the hour she comes to our house, she works on Mattie’s cognitive skills, fine motor skills, speech, and just about everything else. Some things…
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Sponsor-A-Therapy Week – Day 2 & Day 3
Day 2: Sunday was our last day in Gainesville. Mattie completed another 2 ABM sessions. Sunday’s ABM sessions were sponsored by two of my best friends, Roxanne Anderson and Mindy Bennett!! Mattie was pretty tired after our weekend, as you can see 🙂 If you are interested in learning more about ABM, here is a great…
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World Prematurity Day
Today is World Prematurity Day. I keep seeing picture after picture of so many amazing kids who beat the odds. It is pretty cool to see 🙂 Mattie was 9 weeks early, born at 31 weeks. With only a 23 days stay in the NICU, we were hopeful. Here is a pic of Jim holding Mattie’s…
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Whirlwind
The Hope for Mattie Charity Golf Tournament was an amazing success! We raised over $6,500 for Mattie. Every penny raised will go to fund her therapies. We owe a HUGE thank you to all those that participated, volunteered sponsored and donated. We are forever grateful for your generosity. Mattie’s success is a direct reflection of…
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Rolling Along
When Jess told me that she had signed us up for a wheelchair fitting, my first reaction was to resist. I thought up several excuses in my head why Mattie didn’t need one. She was too little-she won’t know what to do with it-we will use it as nothing more than a glorified (expensive) stroller.…
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A diagnosis is not a prognosis
A diagnosis is not a prognosis. I can’t tell you how many times I have repeated this 6 word sentence. Mattie’s Neonatologist told us this when we were called into his office the day we learned Mattie had PVL (brain damage). As Mattie grew and failed to meet milestone after milestone, I would almost chant…
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Run for Hope
To check out pictures from the 1st Annual Run for Hope 5K – Click Here! I will admit that the few days leading up to race day, I was nervous, stressed, and driving everyone crazy, namely Jim. I had been up till 1am for almost 6 days straight working on the details and getting everything…
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What exactly is cerebral palsy? How does this effect Mattie?
Today is World Cerebral Palsy Day, the first one of its kind. To me this is a day to spread awareness, love, and hope. I know that most people don’t know what cerebral palsy really is. Heck, I didn’t really know until Mattie was diagnosed with PVL. Mattie has been diagnosed as having moderate spastic…