Tag: Premature

  • World Prematurity Day

    Today is World Prematurity Day. I keep seeing picture after picture of so many amazing kids who beat the odds. It is pretty cool to see 🙂 Mattie was 9 weeks early, born at 31 weeks. With only a 23 days stay in the NICU, we were hopeful. Here is a pic of Jim holding Mattie’s…

  • 2 Years Later

    Exactly 2 years ago to the day, Jim and I were told I would have to live in a hospital until Mattie was born. Just typing this out makes my heart hurt a little. We were devastated. We kept looking at each other wondering how this happened to us, what would happen to Mattie, how…

  • Welcome

    Having a child with PVL is a waiting game we were told. No one knows the effect the cysts in her brain will have on her development, motor skills or cognitive skills. I remember in the beginning charting milestones… or should I say not charting milestones. Milestones were so important to me. I would spend time…