Tag: Cerebral Palsy
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Rolling with the rest of us
Today is World Cerebral Palsy Day. World Cerebral Palsy Day is a social movement, of, by and for the CP community. The vision of World CP Day is to ensure that everyone with CP has the same rights, access and opportunities as anyone else. Through World CP Day, we will join together to combine our…
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I am Here
Today is World Cerebral Palsy Day. World Cerebral Palsy Day is a social movement, of, by and for the CP community. The vision of World CP Day is to ensure that everyone with CP has the same rights, access and opportunities as anyone else. Cerebral palsy (CP) is the most common physical disability in childhood…
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Something Special
Mattie has started Kindergarten! Not just any Kindergarten class but a regular class at the same school as her brother and cousins! Jim and I have worked hard to make this dream a reality. It has been extremely important to us that Mattie have the same opportunities as her brother. We have spent countless hours…
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How far we have come
Yesterday at the Doctors Office 9 Year old boy: Why is she in a wheelchair? Me: She was born with cerebral palsy. Her brain has a hard time telling her legs what to do 9 Year old boy: So she can’t run or jump or climb? Me: Not exactly, she needs help to do all…
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Embrace it
This year has gone by in a blur. Starting with an eye surgery this past January, countless therapy sessions (162 just this year alone), meeting a life coach and now ending with another surgery in December. This is our life. Welcome. Mattie had a surgery called SPML almost 2 years ago. Only 2 doctors in…
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Thank You!
We wanted to take a moment to say thank you to everyone who ran, walked, volunteered, donated, and sponsored the 3rd Annual Run for Hope 5K and 1 Mile Event. With your help, this year’s race was a huge success! We raised over $3,000, all of which will go directly to Mattie’s therapies. Congratulations to the…
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Cerebral Palsy Awareness Day
Today is Cerebral Palsy Awareness Day. To me this is a day to spread awareness, love, and hope. Today is a day to take a stand for the prevention, treatment and cure of Cerebral Palsy. I know that most people don’t know what cerebral palsy really is. Heck, I didn’t really know until Mattie was…
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Beautifully Broken
I have sat down to write an update several times now and my mind just goes blank. Maybe its writers block (although I certainly don’t consider myself a writer) or maybe its me not wanting to put it all out there anymore or maybe I don’t want Mattie to read all this one day and…
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Continued Support
The 2014 Hope for Mattie Charity Golf Tournament was an amazing success! We raised approximately $8,000! Every penny raised will help pay for Mattie’s new leg braces and continued ABM therapy sessions. We owe a HUGE thank you to all those that participated, volunteered, sponsored and donated. We are forever grateful for your generosity. Mattie’s…
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World Cerebral Palsy Day
Today is World Cerebral Palsy Day, a day that’s all about ideas that will change the world for people with cerebral palsy. “Last year’s winners include a designer walker and a spill-proof cup. I have an idea—but the thing is, it already exists. The concept: More research for cerebral palsy. Some 17 million people across the world…